Rébecca Hubert is a French parent advocate and vice secretary of Alliance Syndrome de Dravet, sharing lived experience of family life with Dravet syndrome and contributing caregiver insight to advocacy and research.

Prof. Nicola Specchio is a paediatric epileptologist specialising in epilepsy syndromes and developmental epileptic encephalopathies. His work focuses on improving diagnosis and care for children with complex epilepsies.