Jay Price, ID Nurse
About Jay
Jay Price is an Intellectual Disability Nurse (Dorset Healthcare University Foundation Trust) and researcher (University of Kent) with a strong passion for improving epilepsy understanding, education, and care, and dedicated to reducing inequalities amongst those affected (especially those with intellectual disability (ID)). With clinical and lived experience supporting people with ID and academic research exploring the disparities of epilepsy care for people with intellectual disabilities within health and social care, Jay is committed to bridging the gap between lived experience, clinical practice, and accessible knowledge. Jay is driven by a commitment to inclusive communication, evidence‑based practice, and creating environments where people with epilepsy and intellectual disabilities can thrive.
Episode
Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse
26 Mar 2026
In this episode we discuss:
Why epilepsy remains underfunded and badly marketed
Public, patient, family and clinician ignorance regarding epilepsy
Misdiagnosis and misunderstanding in epilepsy care
Why co-produced training matters in epilepsy
Hear how epilepsy isn’t sexy and what can be done to change things! 👇
🎬 YouTube 🎧 Podcast 📄Transcript
Areas of focus
Epilepsy and intellectual disabilities
Drug‑refractory epilepsy
Epilepsy advocacy
Training
Reducing health inequalities for people with intellectual disabilities
Links
E-mail Jay.price3@nhs.net
LinkedIn | ORCID | ResearchGate
Related paper "Epilepsy, it's just not sexy, is it?": A qualitative exploration into health and social care professionals' perspectives of people with intellectual disabilities and epilepsy, in social care, Epilepsy & Behavior, Jay Price et al, DOI:10.1016/j.yebeh.2025.110697