Supporting truly patient-centered epilepsy care & research
At the International Epilepsy Congress 2025, our team is sharing practical strategies to support truly patient-centred epilepsy care and research. These toolkits - designed for patients, clinicians, and researchers - are about building stronger, more open conversations that empower everyone involved!
On this page, you’ll find:
Clinician Tips: Building Trust, Clarity & Respect - tools for creating supportive, collaborative, and clear communication with people living with epilepsy.
Patient Tips: Feeling Heard & Asking Questions - guidance to help people with epilepsy feel confident, prepared, and understood during appointments.
Below you can also find photos of and contact details for our wonderful, international team (from Australia, the US, Argentina, and the UK), who came together to develop these resources. Their smiles reflect our shared commitment to improving epilepsy care, one conversation at a time.
The Team!
(Contact details below)
Free tool kits
- for that empowered, productive conversation between patient & clinician
Contact details
Assoc. Prof.
Milena Gandy
Adult Clinical Psychologist
Macquarie University,
Sydney, Australia
milena.gandy@mq.edu.au
Assoc. Prof.
Heidi Munger Clary
Adult Neurologist & Epileptologist
Wake Forest University School of Medicine, NC, USA
hmungerc@wakehealth.edu
Dr. Lucas Orellana
Adult Neurologist & Epileptologist
Jonas Salk Medical Center,
Buenos Aires, Argentina
drlucasorellana@gmail.com
Dr. Brad Kamitaki
Adult Neurologist & Epileptologist
Robert Wood Johnson Medical School, NJ, USA
brad.kamitaki@rutgers.edu
Torie Robinson
Podcast Host,
CEO, Person with an epilepsy
Epilepsy Sparks
London, UK
torie@epilepsysparks.com