Supporting truly patient-centered epilepsy care & research

At the International Epilepsy Congress 2025, our team is sharing practical strategies to support truly patient-centred epilepsy care and research. These toolkits - designed for patients, clinicians, and researchers - are about building stronger, more open conversations that empower everyone involved!

On this page, you’ll find:

  • Clinician Tips: Building Trust, Clarity & Respect - tools for creating supportive, collaborative, and clear communication with people living with epilepsy.

  • Patient Tips: Feeling Heard & Asking Questions - guidance to help people with epilepsy feel confident, prepared, and understood during appointments.

Below you can also find photos of and contact details for our wonderful, international team (from Australia, the US, Argentina, and the UK), who came together to develop these resources. Their smiles reflect our shared commitment to improving epilepsy care, one conversation at a time.

The Team!

The Team!
(Contact details below)

Free tool kits

- for that empowered, productive conversation between patient & clinician

Contact details

Assoc. Prof.
Milena Gandy

Adult Clinical Psychologist
Macquarie University,
Sydney, Australia
milena.gandy@mq.edu.au

Assoc. Prof.
Heidi Munger Clary

Adult Neurologist & Epileptologist
Wake Forest University School of Medicine, NC, USA
hmungerc@wakehealth.edu

Dr. Lucas Orellana
Adult Neurologist & Epileptologist
Jonas Salk Medical Center,
Buenos Aires, Argentina
drlucasorellana@gmail.com

Dr. Brad Kamitaki
Adult Neurologist & Epileptologist
Robert Wood Johnson Medical School, NJ, USA
brad.kamitaki@rutgers.edu

Torie Robinson
Podcast Host,
CEO, Person with an epilepsy
Epilepsy Sparks
London, UK
torie@epilepsysparks.com