International Epilepsy Day is an annual awareness-raising initiative organised by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE).
International Epilepsy Day is now more important than ever!
It is a key initiative that the epilepsy community will use to drive the implementation of the World Health Organisation’s (WHO’s) 10-year (2022 - 2031) Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP).
IGAP contains a specific strategic objective to strengthen the public health approach to epilepsy and two global targets aiming to close the major treatment and inclusion gaps for people with epilepsy worldwide:
Global target 5.1: By 2031, countries will have increased service coverage for epilepsy by 50% from the current coverage in 2021.
Global target 5.2: 80% of countries will have developed or updated their legislation with a view to promoting and protecting the human rights of people with epilepsy by 2031.
One of the key barriers to achieving these epilepsy-specific global targets is the low levels of health literacy and the high levels of misunderstanding and misconceptions about epilepsy.
This lack of knowledge translates into social stigma and exclusion and leads to the discrimination of people with epilepsy across all levels of society. For example, at work, at school or in the community.
Lack of knowledge can also contribute to challenges in access to treatment due to misdiagnosis, inappropriate treatment decisions, inadequate provision of care, and insufficient support for people with epilepsy and those who care for them. In fact, due to the stigma surrounding epilepsy, in many parts of the world, those affected will not come forward to seek care.
Additionally, lack of knowledge also hampers prioritisation of, and resource allocation, to epilepsy by our policy and decision-makers, and acknowledgment of the need for specific policies and programmes to address the burden of epilepsy.
Therefore, this International Epilepsy Day, we want to improve knowledge levels about epilepsy amongst all sectors of society by asking people with epilepsy and those who care for them to share their Epilepsy Journey.
By empowering and amplifying the voices of people with epilepsy, and those who care for them, together we can increase knowledge and understanding.
Join the conversation by sharing your journey with us, or explore the journeys of others to better understand the real impact of epilepsy and to increase knowledge on how, together, we can ensure IGAP’s ten-year roadmap can be used to help us navigate, together, the obstacles encountered on these journeys!
Learn more here.