Blog/Q&A

Dad, Can You Create a Light that Turns On When My Brain Switches Off?

The first time my wife and I saw our son shaking we were in the kitchen. I’ll never forget it. As the shaking occurrences continued, we knew instinctively that they would not just blow over. The hollow gaze, the clinging in the air, the convulsions and especially the anxious, support-seeking look on his face. These continued for a while…

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Diagnosis, Mental Health, PNES, Psychiatry, Stigma, Technology Jo Mackenzie Diagnosis, Mental Health, PNES, Psychiatry, Stigma, Technology Jo Mackenzie

Involuntary Laughing - It’s a Seizure

Epilepsy Jo is the woman sitting where I was sitting; from the moment a seizure starts to the moment it ends. It’s Epilepsy Jo who during a seizure picks at her clothes, fiddles with anything within reach, raises her eyebrows, and smacks her lips. It’s Epilepsy Jo who, as a seizure starts, makes a guttural noise like (really terrible) Mongolian throat singing.

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